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  1. #13
    MAR
    MAR is offline Junior Member
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    I DO DESIRE TO BE SOBER BECAUSE I SEE THE ONLY WHERE I GO ON OPIODS IS DEEP INTO MY DREAMS. EVEN THO THERE NOT BAD THOUGHTS OR DREAMS OR STATES OF MINDS BUT I AM ALIVE AND NOT FUNCTIONING IN REALITY DEOS ME NO GOOD FOR THE FUTURE. I DESIRE TO BE SOBER. I AM JUST REALLY SAD I WOULD SAY. ERR ITS NOT EASY TO GIVE UP ON ..IT WAS LIKE TOUCHING GOD. MY MIND HAVING WINGS. NOW I MUST TRADE ALL THAT IN FOR REALITY I WANT IT. BUT THE OTHER THOUGHTS R SO POWERFUL IN MY HEAD. ITS DIFFICULT. EVERYONE SAYS IT TAKES TIME. N I HOPE IT DOES B/C MY RECEPTORS R STILL CALLING.

  2. #14
    jdude's Avatar
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    Hey MAR,
    Sorry you're having a rough time. Yes we all face a time our DOC, or even the sub turns on us. Time is the only sure cure. But there are things you can do to help that time go easier.
    How can we help?

  3. #15
    LeLe2329 is offline Senior Member
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    Hi Mar, I was just reading ur post .I have been on sub 4 6 days now (TO DETOX FROM OXY"S) Be4 this I was in aa/na for 11 yrs. u wrote That all u wanted was peace 4 a moment, A drug hug,Love & a supernatural feeling! If It was that great how did it bring u to this point?I got high 2 hide the self loathing/depression ect. If It gave me love ,why when I crashed would I want 2 die?U clearly stated that u used 2 get the feelings u r missing? Did u REALLY GET THEM? When I got clean the last time I had 2 feel all that crap,but once I felt it, I learned how to fill up those feelings in other ways, that were healthy. There came a time when I was comfortable in my own skin& it was ok 2 be an addict,because I was around other addicts who ARE ABOUT SOMETHING! The begining of ur post scared me . Please hang in there

    Your words:
    because its so love
    so i can feel that supernatual feeling again
    in my minds kaos , my souls broken i want that extra love
    why cant they makesomething to give you the love. n forget about the rest.

    In Na I was able 2 clear up enough to actually feel theese things &The something 2 give u love was other addicts.
    I'll pray 4 u Please pray 4 me;)Lisa

  4. #16
    LoosingHope is offline Junior Member
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    I hope someone can help...the ER docs label me as an addict and claim these drugs "could not possibly cause these symptoms". Well, THEY DID.

    I am a professional woman who was on 50-60mg of Oxycodone 10/325 and Fioricet w/Codeine 1-2x per day for 2 years for a chronic severe pain neck injury. No incidents, no problems, EVER. Doc (not skilled in pain medicine, it turns out), prescribed 100mcg Fentanyl pain patch as the pain was getting more severe. I only weigh 110lbs. Dose WAY too high. 1st patch, took pain away completely, no "funny" feeling, was great, complete pain relief. 2 days later, hit hard...felt short of breath, shallow breathing,..something not quite right. Waited 5 days, put another one on as I thought I just had to get used to them. 2 days later, same thing. Waited 5 days, tried one more time, but put on thigh to get away from heart. Stayed on for 1 day, took off for good. Please no "should have taken it off & left it off statements...they don't help)

    Immediate pain in stomach, short of breath that wouldn't resolve, felt like maybe I damaged my heart. 2 days later went to ER. They told me the Fentanyl Patch "had nothing to do with it". They ignored my shortness of breath, Told them I would get severe dyspenea just walking across yard. They ignored it. Also, I sudddenly experienced withdrawal symptoms...thrashing around, feeling like I wanted to jump out of my skin. They gave me Ativan. Helped. Doc changed and to cover their ***, they gave me a stress test. Was fine. Then discharged.

    Lost 12 lbs, breathing problems progressed to extreme dyspenea, like I was suffocating. Went to ER, ER doc told husband to "let her hyperventilate, pass out, then she'll get up". I was not hyperventilating, just too much carbon dioxide in blood.

    Finally talked to pharmacist who told me you can't just switch from the meds I was on to the patch. I was struggling to get air like I was drowning. Started taking the Oxycodone again and the breathing improved significantly, but not back to normal. Still very bad dyspenea, shortness of breath, can't seem to fill my lungs with air. The stomach problems seemed to resolve, mostly, so now I can eat a bit.

    I think the change in medication, and withdrawals from Oxycodone, Fentayl and Fioricet affected my autonomic nervous system re: breathing and am suffering from PAWS.

    Has anyone had severe dyspenea (air "hunger", can't get a breath) from withdrawals from Opiods and/or Fentanyl Patch? I am in Midwest and the level of expertise in this is almost non-existent. I am willing to travel anywhere.

    Thank you and please help if you can.
    Last edited by LoosingHope; 08-22-2011 at 06:50 PM.

  5. #17
    Bonita's Avatar
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    Quote Originally Posted by LoosingHope View Post
    I hope someone can help...the ER docs label me as an addict and claim these drugs "could not possibly cause these symptoms". Well, THEY DID.

    I am a professional woman who was on 50-60mg of Oxycodone 10/325 and Fioricet w/Codeine 1-2x per day for 2 years for a chronic severe pain neck injury. No incidents, no problems, EVER. Doc (not skilled in pain medicine, it turns out), prescribed 100mcg Fentanyl pain patch as the pain was getting more severe. I only weigh 110lbs. Dose WAY too high. 1st patch, took pain away completely, no "funny" feeling, was great, complete pain relief. 2 days later, hit hard...felt short of breath, shallow breathing,..something not quite right. Waited 5 days, put another one on as I thought I just had to get used to them. 2 days later, same thing. Waited 5 days, tried one
    more time, but put on thigh to get away from heart. Stayed on for 1 day, took off for
    good. Please no "should have taken it off & left it off statements...they don't help)
    Immediate pain in stomach, short of breath that wouldn't resolve, felt like maybe I
    damaged my heart. 2 days later went to ER. They told me the Fentanyl Patch "had nothing to do with it". They ignored my shortness of breath, Told them I would get severe dyspenea just walking across yard. They ignored it. Also, I sudddenly
    experienced withdrawal symptoms...thrashing around, feeling like I wanted to jump out
    of my skin. They gave me Ativan. Helped. Doc changed and to cover their ***, they
    gave me a stress test. Was fine. Then discharged.
    Lost 12 lbs, breathing problems progressed to extreme dyspenea, like I was
    suffocating. Went to ER, ER doc told husband to "let her hyperventilate, pass out, then she'll get up". I was not hyperventilating, just too much carbon dioxide in blood.
    Finally talked to pharmacist who told me you can't just switch from the meds I was on to the patch. I was struggling to get air like I was drowning. Started taking the Oxycodone again and the breathing improved significantly, but not back to normal. Still very bad dyspenea, shortness of breath, can't seem to fill my lungs with air. Thestomach problems seemed to resolve, mostly, so now I can eat a bit
    I think the change in medication, and withdrawals from Oxycodone, Fentayl and Fioricet affected my autonomic nervous system re: breathing and am suffering from PAWS.

    Has anyone had severe dyspenea (air "hunger", can't get a breath) from withdrawals from Opiods and/or Fentanyl Patch? I am in Midwest and the level of expertise in this
    is almost non-existent. I am willing to travel anywhere.
    Thank you and please help if you can.
    PAWS is post acute wd syndrom. Your taking opiates so can't be paws. Very well that duragesic just dosnt go well with your system. could also be just wd. With the patch places topically, it takes some time to get into your system. I was taught as a hospice nurse that we needed to cover pain for the first 16 hr after patched place...also 16 hrs after removed to start leaving body... I doubt it takes 16 but that is the guidelines. For me ...when wd is kicking in the first thing I notice is increase hr, along with that I became short of breath. So..yes that was part of my wd.
    Not sure what exactly you want help with? Is the plan to get off opiates? Or you want to switch to something stronger. Speaking as a nurse opiates are not for chronic pain..in fact will make the pain worse. Slug go posted a great article on chronic use of opiates....I can't figure out how to copy/paste on this iPad so will bimp it up for you to read.

    Btw...welcome to the forum.
    omission is not honesty, only a different way of lying.

  6. #18
    LoosingHope is offline Junior Member
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    Bonita

    Thank you for responding. I was told by a pharmacist who is familiar with pain doctors, etc. that "you can't go cold turkey off of Oxycodone and switch to Fentanyl without problems". He said just because they are Opiods doesn't mean they have the same acting properties, that the Oxy should have been tapered. Seemed to make sense. I immediately took 2 full oxycodones and my breathing became remarkably better. It also cured my severe stomach issues immediately and I gained 5lbs in 2 days. My breathing wasn't "cured", but I did not feel like I was suffocating.

    I still have a stuffy nose which came on weirdly and found out it is a classic wd symptom of Fentanyl. I have been off the patch for 3 weeks. The alleged "half life" is BS.

    I thought I was getting better, but the breathing problem worsened for no reason yesterday and I have been straining to breathe most of the day. I think that b/c I have been on Opiods for 2 years (although no problems) and 1. I went off cold turkey, 2. I had a bad reaction to patch and went off cold turkey 3. I went back oxy to "test" and my breathing improved, 4. my GI problems virtually disappeared....my assumption is that my CNS became dependent upon them to breathe, I got hit with 2 withdrawals...I am wondering how to get re-regulated. Important to note: when my breathing was alarmingly bad, there was a day I had no opiods...no oxy at all. The next morning my husband thought I was dead. I was pale, I had so little breath that I could not blow my nose or even talk, extremely shallow breath...horrific. This dyspenea happens at rest and on exertion.

    The pulmonist started down the path of "anxiety" and afraid I was going to sue the prescribing DR (which I'm not...but is my right if I choose to and none of his business). My prescribing DR is a psychiatrist (she manages my pain) and is willing to put it in writing that this is not stress or anxiety induced.

    In answer to your question, I just want to know if anyone had "at rest" dyspenea that worsened but got better by taking opiods, if CNS problems like this resolve, should I go through detox...I am looking to get re-regulated, be able to breathe normally, then I'll get off these opiods (I am physically dependent but not addicted...I don't crave them). I'm immensely strong mentally and will do what it takes...but the breathing problem I developed after the patch (an adverse reaction is dyspenea and hypo-ventilation...which is what I initially thought I had) is not a livable condition. I have had to postpone my new franchise I just bought and turn down every contracted job offered (3 of them).

    Any place you could suggest? I am loosing hope of where to turn as no one has "heard of this"...and I have absolutely no "underlying breathing problem", so that's off the table.

    Was willing to try Subutex/buphenorphrine (sp), but Subutex has a side effect that gives you difficulty with breathing. So, as my name says...loosing hope. I have heard that problems can last months, years or indefinitely...

    Don't you think I could have PAWS from the Fentanyl?

    Thank you for any suggestions you may have.

    PS: sorry this is wordy, but I think it's important to initially get all of the facts on the table.

  7. #19
    Bonita's Avatar
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    Of course I could not diagnose via net. I would think if you went to Er they checked your o2 sats? Are you a smoker.. did they do X-ray? Did the Md listen to your lungs?
    I have to think that even the nurse would do o2 sats, lung asses?

    I have to say that if all this was checked...It sounds like wd symptoms to me. they suck.. physically addicted or just dependent. It does feel like your dying. I get short of break, heart beat feels like it gonna pound out of my chest. As the wd continues, I sweat with goose bumps, cold to the bone one min, hot as hell the next.... mostly cold to the bone and sweating at the same time. This is wd. For some, easier, some worse.

    I am not sure what you want.. off the opiates? If so I would suggest that you wean
    off the oxy's. Cut dose evey 4-6 days. Talk to your pain management person. she
    should offer clonidine, calcium, magnesium and something to sleep with. I never suggest suboxone\subtext. I hate it with a passion and poor for pain management. It for those who choose to maintain addiction.

    If your wanting to stabilize on the opiate.. I suggest you talk to the person rx them to you.
    omission is not honesty, only a different way of lying.

  8. #20
    LoosingHope is offline Junior Member
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    Quote Originally Posted by Bonita View Post
    Of course I could not diagnose via net. I would think if you went to Er they checked your o2 sats? Are you a smoker.. did they do X-ray? Did the Md listen to your lungs?
    I have to think that even the nurse would do o2 sats, lung asses?

    I have to say that if all this was checked...It sounds like wd symptoms to me. they suck.. physically addicted or just dependent. It does feel like your dying. I get short of break, heart beat feels like it gonna pound out of my chest. As the wd continues, I sweat with goose bumps, cold to the bone one min, hot as hell the next.... mostly cold to the bone and sweating at the same time. This is wd. For some, easier, some worse.

    I am not sure what you want.. off the opiates? If so I would suggest that you wean
    off the oxy's. Cut dose evey 4-6 days. Talk to your pain management person. she
    should offer clonidine, calcium, magnesium and something to sleep with. I never suggest suboxone\subtext. I hate it with a passion and poor for pain management. It for those who choose to maintain addiction.

    If your wanting to stabilize on the opiate.. I suggest you talk to the person rx them to you.

    The ER said "she's at 100% O2, so she IS breathing". This was told to me as I was straining to get even the smallest breath. Getting a full, satisfying breath could be counted on one hand in a 24hr period. I was discharged with no medication, no help or suggestions. I asked the DR if the chest x-ray showed a paralyzed hemi-diaphragm/diaphragm and his response was "that's irrelevant" (yes, that actually happened). My blood pressure was high, then dropped really low ( at another ER the blood pressure dropped to 98/58 range repeatedly...the nurses triple checked it, but did nothing). I have never had a blood pressure problem. I now see that this was wd symptoms. Heart beat erratic. Another wd symptom.

    My breathing gets better with the Oxy and my theory is that the lungs have tons of natural opiates/oids in the alveolar scas and when I went off them 100%, especially the day I could not even whisper due to lack of breath, the opiod receptors were void of necessary opiods. I think that b/c when I took a double dose when I was straining to breathe and my chest muscles were so fatigued from trying to breathe, my breathing improved IMMEDIATELY, by about 90%. So, I wonder if I am now damaged and have to take the opiods to breathe?

    I have no pain doctor, I am in a rural area with NO expertise. The prescribing MD is not skilled. If you or anyone reading this has a reputable, skilled pain doctor who is skilled in Fentanyl and opiods, I would appreciate a name. I would like to call & interview them & if they sound good, I'll travel.

    Note: I got the sweats, chills, sweats & chills, shakes...that is extremely uncomfortable but I'll get through that. The not being able to breathe or FEELING like I can't breathe...that's another story. No, I have never smoked. If I can get the breathing straightened out, then I can taper. But if I taper, it may cause me not to be able to breathe. I am in agreement about Subutex. I think breathing would immediately cease. I asked my prescribing DR for Theolyine (looked good in print) but can't tell if it is working b/c of increase in opiods. I really think the opioids have helped me breathe, not the Theolyine.

    If I had any idea the amt of opiods I was taking could do this, I would have taken a different course. I am in Hell.

    Thanks again. DID YOU TAKE THE CLONIDINE FOR HIGH BP OR FOR BREATHING/SOB ISSUES?

  9. #21
    Bonita's Avatar
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    It's just wd and your addicted to opiates now. Sound to me it's pure withdrawal that we all go thru when we stop opiates. Your not going to stop breathing. Actually opiate wd is pretty safe..just feels like we are gonna die, or wish we were are already dead.
    So you have to decide if your going to feed the addiction and live that life or get clean. Opiates not being the best choice for pain, in fact makes it worse.
    Can't help you with Md, srry.
    omission is not honesty, only a different way of lying.

  10. #22
    Bonita's Avatar
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    No...I took clonidine for wd symptoms. No seasoned addict would be caught without it. I am a seasoned addict that is now free of addiction. I only take omega 3, multiple vit and aspirin daily these days. My life free of opiates is pretty great.
    omission is not honesty, only a different way of lying.

  11. #23
    serenity80's Avatar
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    Default Re: HOW LONG DOES IT TAKE TO GET OUT OF YOUR SYSTEM TH

    Loosing hope, Could u be suffering an allergic reaction to patches????
    If you learn to quit, that too becomes a habit.
    -Vince Lombardi

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